I don't know where I am at the moment. Either up or down and not very much between the two. I suppose it's to be expected but I'm not that keen on the roller coaster feeling. I didn't realise that we never got off the roller coaster last year when Katy's neck looked to be healing well and the consultant at the hospital discharged us. It turns out that it hadn't stopped after all. It had paused back at the beginning but the seat belts never clicked undone and it was so still that we didn't notice. Now we're off being dragged along and I don't want to do it again.
Got to stop being so maudlin. Onto more cheerful things.
The other day was Katy's birthday party and we had sixteen children at a local soft play centre for a disco and games and food and climbing and sliding and lots of noise. Katy had on her Batman T shirt and thoroughly enjoyed being Queen Bee. She danced with abandon and blew out her candles and it was lovely. No sign of any worries. I wonder if they're lurking, things she's heard from the doctor or from me that are planted in her mind ready to grow into something.... but there I go again. I'm trying to be positive.
Positive.
She's opened her presents and waved her musical magic wand and shared her new Barbie doll with her big sister (a bit) and now she's sitting on the sofa with Peppa Pig as the exertions of the weekend seem to be catching up with her. Thumb in mouth, eyelids heavy. In church on Sunday she asked me at 11.40 am how long it was until bedtime.
I'm finding positive hard.
Forgive me, Lord. I'm struggling to find words today.
A list is called for. Always seems to fill a gap when I'm short of joining words.
Here we go.
Good Things:
But I depend on you. A large part of me doesn't want to because I want to get along by myself. I want to have the answers and I want to be self-sufficient. I don't want to have to surrender control because without it I feel at sea. I feel insecure and uncertain. They've told me that Katy's ill again and every fibre of me wants to make her better. To make it go away. To say, 'No, we're not having this.' To go to the counter and complain and say that we won't put up with this.
But I can't. All I can do is open my hands and depend on you.
Positive.
She's opened her presents and waved her musical magic wand and shared her new Barbie doll with her big sister (a bit) and now she's sitting on the sofa with Peppa Pig as the exertions of the weekend seem to be catching up with her. Thumb in mouth, eyelids heavy. In church on Sunday she asked me at 11.40 am how long it was until bedtime.
I'm finding positive hard.
Forgive me, Lord. I'm struggling to find words today.
A list is called for. Always seems to fill a gap when I'm short of joining words.
Here we go.
Good Things:
- Elizabeth nearly doing the crab in her second gymnastics class this weekend and so triumphant.
- Katy walking along the beam (low to the ground) all on her own and so triumphant.
- Daffodils. May have mentioned them before but I just love daffodils.
- Good cup of coffee. Like this one. (Scraping the barrel here).
- Friends. I am truly blessed with friends who care. (Not scraping the barrel here).
- You. You're the only thing that never changes. The only thing in my life that's permanent and unshifting and solid and always there.
In church we sang Brian Doerksen's song 'Faithful One'. I cried.
'Faithful one, so unchanging
Ageless one, you're my rock of peace
Lord of all I depend on you
I call out to you, again and again
I call out to you, again and again'
You are faithful and you are unchanging. You are the only thing that is steady enough to cling onto. Lord, I sometimes hate being so helpless. I can't make my daughter better and I can't do anything about so many situations that upset me. I just can't heal and I can't mend and I can't break down barriers. You can do all these things. It mystifies me when you can and you don't.
But I can't. All I can do is open my hands and depend on you.
I feel a bit like a child beating my hands against your chest and crying and wailing only to run out of energy and collapse into your arms and sob. I can stamp and I can ask you, 'Why? Tell me why?' but you don't have to explain yourself to me and you won't.
Will good come out of Katy's illness? I don't know. Will you see us through it? You did before and you will again. Why? Because you love Katy and you love me. You love our family. Will you be with us all the way through? I know, I know. I know you will.
'You are my rock in times of trouble
You lift me up when I fall down
All through the storm
Your love is the anchor
My hope is in you alone'
You are my rock. I'm clinging on again. Last year I did a lot of clinging. A lot of waiting and holding on and there were a lot of tears. It was a year where I found you in a new way at the same time as going through some of the toughest times of my life. I fell over again and again and you did indeed lift me up. The storm raged and you did indeed hold me fast. I said that I was adrift - well, you were my anchor. Without you I'd be lost in the ocean and it wouldn't be long before I could tread water no longer and I'd sink.
You are my anchor. You show me where home is. You keep me afloat. You stop me from drifting. You are secure and faithful.
Where else could I put my hope? My faith is so small, sometimes. I know parents right now who are going through agonies with their children who may not survive the illness they have. I know Mums for whom Mothers' Day was acutely painful since they are no longer a Mummy to anyone, or for whom motherhood just won't seem to happen. I am so blessed with my two wonderful girls. A husband who loves us. A Mummy of my own for whom a card and chocolates on Mothers' Day just isn't enough.
I have so much to be thankful for. But still this song started in church and my throat closed. Tears started.
You are my rock in times of trouble.
I've got trouble again, Father. I need you. I need a hug from my Daddy. I need a good night's sleep. I need to think clearly. I need to hold onto the anchor.
Lord, I'm sorry if I'm going on about this. I'm just going to say this and then I promise I'll try to focus elsewhere.
Heavenly Father, heal my little girl. Take away any worries that she has that she hasn't articulated, any half-formed thoughts or confusion that she might have. Make them go away.
Heal her physically and emotionally and spiritually and any way that needs healing. Leave no scars.
Don't allow her to sense fear or anxiety in me. It isn't me who's ill. It's not my neck, my lymph system, my body. She doesn't understand that when people hurt her with needles or even sticking plasters that they're doing it for her own good. How frightening must it be to be small and have such trust; depend on your all-powerful parents and then find that they don't stop the bad things from happening after all? Even when you scream, 'Mummy, make them stop! They're hurting me!' I didn't make it stop and I can't now. I let them take blood and I let them dress her wound but my littlest girl didn't understand. What a betrayal.
Be with my Elizabeth too, Father. I don't know what she thinks about all this. She's kind and tender and vulnerable. She understands more and more as she gets older but she's only so small and having a little sister who's poorly must be so hard to cope with. Last time she was beside herself with worry about her little sister and spent hours making get well cards and pictures and kept asking if Katy was alright. Lizzie is a worrier. She gets anxious and stores things away to worry about (I wonder who she gets that from?). Please place your hand on her and take away anything bad that's planted in her mind or her heart. Don't let it grow and take hold.
Please don't allow us to focus so much on Katy that we don't notice Elizabeth's struggles. Make sure that Lizzie knows how special she is as well as her little sister. Give us eyes to see and ears to hear and perception to know what needs saying and when. And what should go unsaid.
Sigh.
Be there, Lord. Come into the middle of all this and bring peace of mind. Circle Katy, Lord. Keep darkness out and peace inside.
Thankyou for all that you've given me and for the assurance that you will never leave.
Lord of all, I depend on you
I call out to you, again and again.
"He is a the strong tower; the righteous run into Him and they are saved." Lifting you up in prayer today, friend.
ReplyDeleteThankyou. Means a lot. Hx
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